Mission Statement:
Jett Foundation empowers people and families impacted by Duchenne muscular dystrophy through the development of transformative programming, educational opportunities, and ongoing support for every stage of a Duchenne journey.
About Duchenne:
Duchenne is a rare disease, primarily affecting boys. Children are usually diagnosed at preschool age as they fail to meet developmental outcomes. Duchenne is a progressive neuromuscular disorder that causes a loss of motor, pulmonary and cardiac function, and ultimately, premature death. There is no cure, but treatment can improve quality of life. Jett provides the backbone of direct services to families.
About Camp Promise:
As a program of Jett Foundation, Camp Promise helps meet our mission by providing a barrier-free, overnight camp for individuals (13 years of age and older) with muscular dystrophy or select neuromuscular diseases — regardless of capability or ability to pay. Our camper-focused programming builds independence, confidence, and life skills through traditional camp activities and by bringing campers new experiences through adaptation, technology, creativity, and special guests.
Website: https://www.jettfoundation.org
Instagram Handle: @jettfoundation